Patient Stories

Many of the people who use our Patient Support Service tell us how isolating it can feel to have an illness that most of their friends and family don’t understand. As well as joining an online support group, they often say that reading about others in their position helps them to feel less alone. We are humbled to be able to share some of the stories of some of the people we have supported. You can find out more about the experiences of people affected by antibiotic-resistant infections below.

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Mary has had recurrent urinary tract infections for 30 years, ever since the birth of her second son.
Helen experienced an antibiotic-resistant UTI, Group B Streptococcus while pregnant and sepsis.
Ronda acquired a resistant UTI after surgery.
Lisa has had multiple infections in medical devices and her lungs.
Annabelle experienced recurrent resistant infections after breaking her leg.
Emily has lived with recurrent resistant urinary tract infections since the age of three.
Tony had MRSA in his spine that was detected due to severe back pain.
Sharon experienced recurring UTIs, until one day she was told she had ESBL E Coli – bacteria which are resistant to many antibiotics.
Nina has a recurrent resistant infection that requires antibiotics for the rest of her life
Vanessa experienced recurrent MRSA infections after surgery following a car accident.
Jill depends on antibiotics after becoming partially immunocompromised.
Rachael experienced a series of UTI infections and sepsis when she was only 16 years old.
Ashley experienced recurrent sinus infections and complications from Crohn's disease.
Sheila has had recurrent UTIs for more than 50 years.
John has experienced ongoing skin and soft tissue infections after a surgical procedure in 2012.
Vicki contracted pyelonephritis that developed into septicaemia.
Meghan experienced recurring acute UTIs resulting in days lost from university and numerous courses of antibiotics.